Author Archives: 1 Man, 3 Hearts

About 1 Man, 3 Hearts

After collapsing in my NJ home one night at the age of six, due to heart failure, doctors were convinced that I would not live to see my seventh birthday. Three decades later, I have defied all the odds that were placed against me. I will be turning thirty-seven this summer. Upon discovery that I was in complete heart failure (age 6), I was rushed to the NIH research hospital in Maryland. At this time, I had an emergency dual chamber pacemaker implanted. Since then I have survived two heart transplants, a kidney transplant, gall bladder removal, lung collapse, pain medication drug overdose, and a tracheotomy. Unfortunately my transplanted kidney failed two years ago placing me back on dialysis three times per week. At the age of twenty-seven, I was diagnosed with a rare muscular disease known as Myofibrillar Myopathy. This disease progressively attacks the various muscle groups of a person’s body over time. In my case, it was discovered that this disease was also responsible for initially attacking my heart muscle at age 6. In the last two years, I have lost usage of about eighty percent of my bodily function to my illness. I am currently wheelchair bound, sleep with a ventilator every single night, and require the assistance of a full time (24/7) personal aide who resides with me. My life is full of challenges, it’s all I’ve ever known. I’ve had my share of dark moments. However, I refuse to allow this to keep me from enjoying life and living everyday to the fullest. I have gained a great deal of perspective and learned many valuable lessons over the course of my life. My goal is to be able to give back and share my story in a way that can help others who may be facing difficult circumstances and encourage them to keep fighting. I also believe it is important to raise awareness for rare diseases as well as the importance of organ donation. I have chronicled my life in a book, “1 Man, 3 Hearts, 9 Lives,” available for purchase on Amazon. I truly appreciate all your support, thank you! 💙